Canadian MPS Society for Mucopolysaccharide and Related Diseases
In 1984, Sheila Lee’s daughter, Brandy, was diagnosed with MPS I. Sheila and her husband, Loren, were told there was no treatment or cure and that Brandy would die before she turned ten. It was then that they realized their eldest daughter, Rachelle, had died in 1979 from MPS having never been diagnosed.
Basic Information
- Category: organization
- Website: https://www.mpssociety.ca/
Documented Facts
- Phone: (604) 924-5130 (No linked source recorded for this statement.)
- Email: info@mpssociety.ca (No linked source recorded for this statement.)
Evidence and Sources
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- Data status: Enriched
- Profile completeness: Source-backed profile (80/100)
- Indexing directive: index, follow, max-image-preview:large
- Recorded profile date: 2026-04-22
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AI summary
In 1984, Sheila Lee’s daughter, Brandy, was diagnosed with MPS I. Sheila and her husband, Loren, were told there was no treatment or cure and that Brandy would die before she turned ten. It was then that they realized their eldest daughter, Rachelle, had died in 1979 from MPS having never been diagnosed.
Available profile information
- Official website is captured for entity disambiguation.
- 1 official source linked for verification.
- 2 structured facts available for extraction.
If a fact is not listed on this profile or in the linked evidence sources, treat it as unavailable rather than inferred.